Module 6 — Recommended readings

Armstrong, M. J., Paulson, H. L., Maixner, S. M., Fields, J. A., Lunde, A. M., Boeve, B. F., Manning, C., Galvin, J. E., Taylor, A. S., & Li, Z. (2021). Protocol for an observational cohort study identifying factors predicting accurately end of life in dementia with Lewy bodies and promoting quality end-of-life experiences: The PACE-DLB study. BMJ Open, 11(5), Article e047554. https://doi.org/10.1136/bmjopen-2020-047554

Armstrong, M. J., Sullivan, J. L., Amodeo, K., Lunde, A., Tsuang, D. W., Reger, M. A., Conwell, Y., Ritter, A., Bang, J., Onyike, C. U., Mari, Z., Corsentino, P., & Taylor, A. (2021). Suicide and Lewy body dementia: Report of a Lewy body dementia association working group. International Journal of Geriatric Psychiatry, 36(3), 373–382. https://doi.org/10.1002/gps.5462

Australian Institute of Health and Welfare. (2015). The health and welfare of Australia’s Aboriginal and Torres Strait Islander peoples: 2015. https://www.aihw.gov.au/reports/indigenous-australians/indigenous-health-welfare-2015/contents/table-of-contents

Australian Institute of Health and Welfare. (2012). Dementia in Australia. https://www.aihw.gov.au/reports/dementia/dementia-in-australia/contents/table-of-contents

Bentley, A., Morgan, T., Salifu, Y., & Walshe, C. (2021). Exploring the experiences of living with Lewy body dementia: An integrative review. Journal of Advanced Nursing. https://doi.org/10.1111/jan.14932

Borda, M. G., Castellanos-Perilla, N., Tovar-Rios, D. A., Oesterhus, R., Soennesyn, H., & Aarsland, D. (2021). Polypharmacy is associated with functional decline in Alzheimer’s disease and Lewy body dementia. Archives of Gerontology and Geriatrics, 96, Article 104459. https://doi.org/10.1016/j.archger.2021.104459

Bravo-Benítez, J., Cruz-Quintana, F., Fernández-Alcántara, M., & Pérez-Marfil, M. N. (2021). Intervention program to improve grief-related symptoms in caregivers of patients diagnosed with dementia. Frontiers in Psychology, 12, Article 628750. https://doi.org/10.3389/fpsyg.2021.628750

Chia, R., Sabir, M. S., Bandres-Ciga, S., Saez-Atienzar, S., Reynolds, R. H., Gustavsson, E., Walton, R. L., Ahmed, S., Viollet, C., Ding, J., Makarious, M. B., Diez-Fairen, M., Portley, M. K., Shah, Z., Abramzon, Y., Hernandez, D. G., Blauwendraat, C., Stone, D. J., Eicher, J. … Scholz, S. W. (2021). Genome sequencing analysis identifies new loci associated with Lewy body dementia and provides insights into its genetic architecture. Nature Genetics, 53(3), 294–303. https://doi.org/10.1038/s41588-021-00785-3

Dent, E., Morley, J. E., Cruz-Jentoft, A. J., Woodhouse, L., Roíguez-Mañas, L., Fried, L. P., Woo, J., Aprahamian, I., Sanford, A., Lundy, J., Landi, F., Beilby, J., Martin, F. C., Bauer, J. M., Ferrucci, L., Merchant, R. A., Dong, B., Arai, H., Hoogendijk, E. O., … Vellas, B. (2019). Physical frailty: ICFSR international clinical practice guidelines for identification and management. The Journal of Nutrition, Health & Aging, 23(9), 771–787. https://doi.org/10.1007/s12603-019-1273-z

Donaghy, P. C., Barnett, N., Olsen, K., Taylor, J. P., McKeith, I. G., O’Brien, J. T., & Thomas, A. J. (2017). Symptoms associated with Lewy body disease in mild cognitive impairment. International Journal of Geriatric Psychiatry, 32(11):1163-1171. https://doi.org/10.1002/gps.4742

Enright, J., O’Connell, M. E., Branger, C., Kirk, A., & Morgan, D. (2020). Identity, relationship quality, and subjective burden in caregivers of persons with dementia. Dementia, 19(6), 1855–1871. https://doi.org/10.1177/1471301218808607

Killen, A. (2021). Psychosocial support for people with dementia with Lewy bodies. Nursing and Residential Care, 23(5), 1-8. https://doi.org/10.12968/nrec.2021.23.5.3

Lee, D.R., McKeith, I., Mosimann, U., Ghosh‐Nodyal, A., & Thomas, A.J. (2013). Examining carer stress in dementia: The role of subtype diagnosis and neuropsychiatric symptoms. International Journal of Geriatric Psychiatry, 28(2), 135-141. https://doi.org/10.1002/gps.3799

Matar, E., Shine, J. M., Halliday, G. M., & Lewis, S. J. G. (2019). Cognitive fluctuations in Lewy body dementia: Towards a pathophysiological framework. Brain, 143(1), 31–46. https://doi.org/10.1093/brain/awz311

Mueller, C., Ballard, C., Corbett, A., & Aarsland, D. (2017). The prognosis of dementia with Lewy bodies. Lancet Neurology, 16(5), 390–398. https://doi.org/10.1016/S1474-4422(17)30074-1

O’Brien, J. T., McKeith, I. G., Thomas, A. J., Bamford, C., Vale, L., Hill, S., Allan, L., Finch, T., McNally, R., Hayes, L., Surendranathan, A., Kane, J. P. ., Dunn, S., Bentley, A., Barker, S., Mason, J., Burn, D., & Taylor, J. (2021). Introduction of a management toolkit for Lewy body dementia: A pilot cluster‐randomized trial. Movement Disorders, 36(1), 143–151. https://doi.org/10.1002/mds.28282

Pezzoli, S., Cagnin, A., Bussè, C., Zorzi, G., Fragiacomo, F., Bandmann, O., & Venneri, A. (2021). Cognitive correlates and baseline predictors of future development of visual hallucinations in dementia with Lewy bodies. Cortex, 142, 74–83. https://doi.org/10.1016/j.cortex.2021.05.018

Singer, J., & Papa, A. (2021). Preparedness for the death of an elderly family member: A possible protective factor for pre-loss grief in informal caregivers. Archives of Gerontology and Geriatrics, 94, Article 104353. https://doi.org/10.1016/j.archger.2021.104353

Svendsboe, E., Terum, T., Testad, I., Aarsland, D., Ulstein, I., Corbett, A., & Rongve, A. (2016). Caregiver burden in family carers of people with dementia with Lewy bodies and Alzheimer’s disease. International Journal of Geriatric Psychiatry, 31(9), 1075-1083. https://doi.org/10.1002/gps.4433

Warren, L.A., Shi, Q., Young, K., Borenstein, A., & Martiniuk, A. (2015). Prevalence and incidence of dementia among Indigenous populations: A systematic review. International Psychogeriatrics 27(12), 1959-1970. https://doi.org/10.1017/S1041610215000861