Module 6 — Recommended readings

Armstrong, M. J., Paulson, H. L., Maixner, S. M., Fields, J. A., Lunde, A. M., Boeve, B. F., Manning, C., Galvin, J. E., Taylor, A. S., & Li, Z. (2021). Protocol for an observational cohort study identifying factors predicting accurately end of life in dementia with Lewy bodies and promoting quality end-of-life experiences: The PACE-DLB study. BMJ Open, 11(5), Article e047554.

Armstrong, M. J., Sullivan, J. L., Amodeo, K., Lunde, A., Tsuang, D. W., Reger, M. A., Conwell, Y., Ritter, A., Bang, J., Onyike, C. U., Mari, Z., Corsentino, P., & Taylor, A. (2021). Suicide and Lewy body dementia: Report of a Lewy body dementia association working group. International Journal of Geriatric Psychiatry, 36(3), 373–382.

Australian Institute of Health and Welfare. (2015). The health and welfare of Australia’s Aboriginal and Torres Strait Islander peoples: 2015.

Australian Institute of Health and Welfare. (2012). Dementia in Australia.

Bentley, A., Morgan, T., Salifu, Y., & Walshe, C. (2021). Exploring the experiences of living with Lewy body dementia: An integrative review. Journal of Advanced Nursing.

Borda, M. G., Castellanos-Perilla, N., Tovar-Rios, D. A., Oesterhus, R., Soennesyn, H., & Aarsland, D. (2021). Polypharmacy is associated with functional decline in Alzheimer’s disease and Lewy body dementia. Archives of Gerontology and Geriatrics, 96, Article 104459.

Bravo-Benítez, J., Cruz-Quintana, F., Fernández-Alcántara, M., & Pérez-Marfil, M. N. (2021). Intervention program to improve grief-related symptoms in caregivers of patients diagnosed with dementia. Frontiers in Psychology, 12, Article 628750.

Chia, R., Sabir, M. S., Bandres-Ciga, S., Saez-Atienzar, S., Reynolds, R. H., Gustavsson, E., Walton, R. L., Ahmed, S., Viollet, C., Ding, J., Makarious, M. B., Diez-Fairen, M., Portley, M. K., Shah, Z., Abramzon, Y., Hernandez, D. G., Blauwendraat, C., Stone, D. J., Eicher, J. … Scholz, S. W. (2021). Genome sequencing analysis identifies new loci associated with Lewy body dementia and provides insights into its genetic architecture. Nature Genetics, 53(3), 294–303.

Dent, E., Morley, J. E., Cruz-Jentoft, A. J., Woodhouse, L., Roíguez-Mañas, L., Fried, L. P., Woo, J., Aprahamian, I., Sanford, A., Lundy, J., Landi, F., Beilby, J., Martin, F. C., Bauer, J. M., Ferrucci, L., Merchant, R. A., Dong, B., Arai, H., Hoogendijk, E. O., … Vellas, B. (2019). Physical frailty: ICFSR international clinical practice guidelines for identification and management. The Journal of Nutrition, Health & Aging, 23(9), 771–787.

Donaghy, P. C., Barnett, N., Olsen, K., Taylor, J. P., McKeith, I. G., O’Brien, J. T., & Thomas, A. J. (2017). Symptoms associated with Lewy body disease in mild cognitive impairment. International Journal of Geriatric Psychiatry, 32(11):1163-1171.

Enright, J., O’Connell, M. E., Branger, C., Kirk, A., & Morgan, D. (2020). Identity, relationship quality, and subjective burden in caregivers of persons with dementia. Dementia, 19(6), 1855–1871.

Killen, A. (2021). Psychosocial support for people with dementia with Lewy bodies. Nursing and Residential Care, 23(5), 1-8.

Lee, D.R., McKeith, I., Mosimann, U., Ghosh‐Nodyal, A., & Thomas, A.J. (2013). Examining carer stress in dementia: The role of subtype diagnosis and neuropsychiatric symptoms. International Journal of Geriatric Psychiatry, 28(2), 135-141.

Matar, E., Shine, J. M., Halliday, G. M., & Lewis, S. J. G. (2019). Cognitive fluctuations in Lewy body dementia: Towards a pathophysiological framework. Brain, 143(1), 31–46.

Mueller, C., Ballard, C., Corbett, A., & Aarsland, D. (2017). The prognosis of dementia with Lewy bodies. Lancet Neurology, 16(5), 390–398.

O’Brien, J. T., McKeith, I. G., Thomas, A. J., Bamford, C., Vale, L., Hill, S., Allan, L., Finch, T., McNally, R., Hayes, L., Surendranathan, A., Kane, J. P. ., Dunn, S., Bentley, A., Barker, S., Mason, J., Burn, D., & Taylor, J. (2021). Introduction of a management toolkit for Lewy body dementia: A pilot cluster‐randomized trial. Movement Disorders, 36(1), 143–151.

Pezzoli, S., Cagnin, A., Bussè, C., Zorzi, G., Fragiacomo, F., Bandmann, O., & Venneri, A. (2021). Cognitive correlates and baseline predictors of future development of visual hallucinations in dementia with Lewy bodies. Cortex, 142, 74–83.

Singer, J., & Papa, A. (2021). Preparedness for the death of an elderly family member: A possible protective factor for pre-loss grief in informal caregivers. Archives of Gerontology and Geriatrics, 94, Article 104353.

Svendsboe, E., Terum, T., Testad, I., Aarsland, D., Ulstein, I., Corbett, A., & Rongve, A. (2016). Caregiver burden in family carers of people with dementia with Lewy bodies and Alzheimer’s disease. International Journal of Geriatric Psychiatry, 31(9), 1075-1083.

Warren, L.A., Shi, Q., Young, K., Borenstein, A., & Martiniuk, A. (2015). Prevalence and incidence of dementia among Indigenous populations: A systematic review. International Psychogeriatrics 27(12), 1959-1970.